A journal of healing

Posts tagged ‘self-compasssion’

Harassment

This idea for this post came from my Doc friend’s blog. She was talking about harassment and where does the line get drawn. She had a patient who was making passes at her staff in jest, but it was still annoying. Of course it was annoying. It was harassment. And as I wrote back to her, harassment is determined by the person who is receiving it, not the person who is inflicting it. It has nothing to do with the intent. It is all about how something is received.

I also went on to say that for someone who has a traumatic childhood, or was a victim of sexual abuse or other violent acts, the response to someone’s intent to be funny has just the opposite effect. It can cause a major trigger that can put someone into a tailspin for days and weeks. They may not even know what they are reacting to. It could be a word or even the tone of the harasser.

Harassment can come in many forms. Often people think they are doing a good thing. But someone who constantly harasses someone from the concept of improving the person is totally misguided. What makes that person think they have that right? What makes them so superior to be able to comment?

As I thought about this all week, it hit me that parents come from a point of improving their child but when does it become harassment? Isn’t improving a child the role of a parent? Is there a point when the parent should stop trying to improve their child?

What about a spouse or your partner? Is it ok to harass them into doing something, especially when it affects your family or home? It probably is not ok, but it is hard not to do. I speak from experience.

My husband’s 28 year old daughter will not learn to drive. This makes me crazy. She is terrified, she says. She finally got her permit and then took one lesson. This took three years to accomplish. She said the lesson went ok. But she has made no attempt to continue.  Instead, she relies on her father to tote her around like Miss Daisy. I think he enjoys her dependency on him. Did I say this drives me nuts?

I am skilled in motivation interviewing. I teach it matter of fact. I know in my heart that I am not going to move either one of them on this topic, so I resort to harassment- truth be told. My intent to get his daughter to drive is based on the best interests for her. I want her to be independent and not have to rely on US for the rest of her life. We won’t be there. She has no other family and she has no friends. Her mother passed away at the age of 52. She instilled this irrational fear to drive in her daughter as the mother never drove.

The real reason the daughter won’t drive is because then she will be expected to do something with her life. That ain’t happening either. I know this probably irks me more than anything. What a waste.

Does harassing them help? Absolutely not. It only escalates my anger and frustration more. Can I walk away from it? NO. It slaps me in the face every time she calls her father for a favor. There was over twelve years when his daughter was out in California with her mother that she never called or spoke to her father. It hurt him to the core. But when the mother died, it was; “Oh, Daddy.” He can’t see it or chooses not to.

The bottom line is it still harassment, even with the good intent. I know in my heart I want her to have a life and not rot away like her mother did. I am sad that she is wasting her life. She has all the capabilities to do whatever she wants, but she chooses the easy way out. I have no right to her life. But boy, it is hard to keep my mouth shut. I am so helpless on this because she is not even my kid.

The bottom line is harassment is a person attempt to control. It is coming at someone from the viewpoint of superiority, or desiring some effect of change. I lived with harassment my whole life. Although it was sometimes masked in humor, it was my family’s way to control and inflict. Years of harassment left me sensitive to being criticized in any manner.

We cannot change people. We can influence them, we can teach, we can support. But it is impossible to change someone who does not want to. But damn, its hard not to do.

 

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Sending good energy

 Although we had a ton of flooding of our own this spring, it does not compare to the devastation happening in Texas. I hope this will rally the people to help out and unite our country a bit instead of the hatred and arguing that has been prevalent.

There is a change coming. I am not sure if it is just for me or it is broader. For the last 18 years, I experience this vibration within me when something is going to happen. I think people can sense it because it literally shakes me to the core. But no one actually can sense it I have discovered. I feel like I am shivering but I am not cold.

For the past three weeks, I have been doing this shiver, especially in the morning. It has gotten stronger.

My explanation is that when my world is in transition, the energy around me is  shifting from what is current to a new vibration. Translation: something new is on my horizon but not here yet. During the transition, I sense the vibrational shift. The energy changes causes me to feel the vibration of the unbalanced energy load, much like a washing machine that is unbalanced.

There is nothing I can do to turn it off as I believe the energy  is external. I practice breathing, meditation and other calming techniques. This vibration is not anxiety, although sometimes it is paired with it.

But it does make me out of sorts until it passes. It also make me wonder what is coming. It the past, what has shown up has been losing a job, going through my divorce, selling my house and ending a terrible relationship. All difficult transitions but all came out to a better life situation for me.

The truth is that I do want a change in certain parts of my life. I realized many things while we were on vacation. I am hoping I am attracting a positive new situation for me.

 

Fearless….again

  I am reblogging one of my own posts that someone recently sent back to me to remind me of my own words. I am struggling with so much lately. My health is not great as it seems that the PsA has done a lot of damage to my kidneys and guts. This past three years and especially this winter, was particularly bad for me. But, as the doctor said on  this past Friday, well at least it did not decline anymore according to my recent labs. As I sat in the garden this morning, I searched for words to console me. Then, in an attempt to clean up my email, I came across this:

Fearless

Posted on June 4, 2013

Once you step free from the limiting, linear straight jacket that narrowed the understanding of the vastness of your consciousness, everything seems to fall into place, (because it was always exactly as it was intended to be anyway, you just didn’t see it that way). There will be nothing to worry about, and no sadness to embrace; at the very least, you will be much less inclined to engage in that sort of thinking. – Rising Hawk

These words written by my friend are the key to living longer and happier. It is not the first time I have read or heard similar messages, but sometimes you can look at something and feel nothing. Other times it pulls you by the collar and slaps you soundly. This is how this hit me.

To release control, to allow your life to happen…such basic concepts and yet, not easily done for people who are frightened. I paused as I wrote the word frightened because it is word that evokes pity or distain, but it is the word I choose but not my intent. I have to advocate for those who are in or come from surroundings that to the outsider seem safe or harmless. These souls present to the world a false bravado while under their skins pulses the sense of fear. It is the walk of many, including me.

I am one who struggles daily with fear of what might be construed as silly to some. But that is what this is all about. Fear is as individual as the person containing it. I fight mightily to allow the control of my life to flow without my choking grip on it. It was making me sick and my body was tired from holding on so tight. For those who may seek some comfort in my writing, it is possibly to let go even if it is an inch at a time. Each forward release allows for more room to breathe and the body to function as it should.

How does one get to be enclosed in a box? It comes from so many sources. It is life. For some people, much like me, it comes from a dysfunctional and abusive life. I was sitting in a car this weekend listening to a school psychologist talking to another friend about children she has helped whose parents were abusive alcoholics. I sat and listened while my friend was so amazed and horrified with the stories as if they were just that, fiction. I wanted to chime in and share my personal story, but instead sat back and just listened. It was difficult and I actually felt some anger as the two of them talked about the children as statistical information.  I also felt some relief to know that this is not WHAT I am as this person in the car, but only my story. I had a sense of relief if nothing else.

I see and hear every day the barrage of negativity thrust upon us daily to keep us reigned in. We see and hear all the things we need to buy or obtain in order to be something that sadly we are lacking. It takes a strong will to turn away and not succumb to the temptation to secure a better car, house, body, clothes, and on and on. We force this standardization on our children to make them fit in and behave in an approved manner. Why is that we allow this fear and perpetuate this environment of control? This is a question that has been around forever. See the Allegory of the Cave by Socrates. We have survived as pack animals.

“No sadness to embrace…” I held those words in my thoughts all night. Embrace; what a strange concept to think we enjoy sadness. But we do. We love drama. We pay to see actors portraying life struggles because we can empathize and feel  our own sadness as a bonding emotion. Pathos. It what drama is all about. I have friends whose whole life is based on a miniseries of dramas. It is food for their lives. I am not exempt from this either and that is why those words struck me. I work in an environment where the drama level is fed daily. Most is simple confusion of an unorganized work flow. But they have been this way forever and I realize it is a culture that is embraced. They live for the confusion because it is an opportunity to emote and wring hands. They bond with each other in their complaining and strife. I see the same culture in my in-laws. They are passionate about the anguish produced from the simplest situation. It produces a slew of emails and phone calls until the event is secured or past. Then it stirs up the discussion and critic of the players involved, which is often another go around of scorn.

But the sadness I am referring to is the self-inflicted kind which I am truly guilty of. I have seen pictures of me where the sadness is evident in my eyes. People have commented on it as I do not hide my feelings well. NO, in truth, they cloak me like a neon sign. I have become aware of the origin of my sadness and I know in my head, that I cannot change what has happened. This is where I have come to the fork in the road so to speak. I can choose to “not engage in that sort of thinking…”

Can it be that simple? This is one of the life lessons that does not come with great directions on how to do something. I read, listen, and participate in learning as much as any seeker does. Is this not what we all really want, to not be sad and to be free from control? I figured out that no, actually not everyone does want that and will take you with them down the hole if you allow. And then there are some who see a secure and happy person and will go to great lengths to sap the life out of them. They are like a mosquito sucking the life blood of other’s because it is easier than obtaining it on their own. It takes great strength to disallow these creatures their feast. Our own minds can be a foe and a little fear can spiral out to become a monster of our own making. Fear is a companion that has been with me a long time. I am not going to sever the relationship overnight, but to travel on I must begin. This will be a long climb but one I must make……. alone.

Being a hermit

I take such joy in things such as nature and the environment when it is beautiful. And I take such offense when it is not. I relish the joy emanating from small children and yet have no patience for the hedonistic tendencies of the twenty to thirty something age group. I can sit in peace and quiet all by myself for hours and cherish those times. I freak out now in crowds and with loud noises. I struggle with incongruences. I have no tolerance for lies. In truth, my patience level is very low; not that I had a lot to being with. Sometimes, many times, I just want to be left alone. This is when I love my garden the most.

Garden at night

I used to be a people person. I am not sure when I got to hermit level, but that is about where I am. I used to entertain every weekend with parties and picnics. It was nothing for me to host a dinner for twelve. In fact, if I did not have something planned for the weekend, I felt like something was terribly wrong. I used to do things also during the week at night. No more. I do not want to nor do I have the energy to do much after working all day. I am up at five and at work shortly after seven am. By eight pm, I am asleep in my chair, in my garden.

It took a long time for my husband to understand alone time. He felt we had to do everything together all the time. Now he gets it and has learned that he also needs time and space by himself. We do not enjoy the same activities after dinner. He is a TV watcher, I am a reader. He goes to his man cave and I go to the garden.

Even at work, I am isolated and by myself. My office is hidden and off the beaten path. People do come and visit because it is a nice office and I take the time to listen. I run fans all year long to block out the sound of anyone near me and to help muffle the talking in my office. Our building is such a piece of crap. It is dirty and stuffy and no windows open.  The ventilation system does not work well and in my area, it does not work at all. In winter I freeze, in summer I cook. Hence two of the four  fans have heat. We are supposedly building a new facility but that is a least two years off and I probably will be retired. Why I love my space is because I have a huge window. There are only ten windows for the whole building.  I have plants in my office. Most cannot grow anything in the building. But however nice my space is, by the end of the day, my head is stuffed up and aches. I long for being outside in the fresh air.

Full moon over garden

People keep saying that when I retire I will be bored. I do not think so. My tolerance for hustle and bustle is nil. I am a completely different person when I do not have a schedule and “must-dos” on my list. It is not my intention to just sit and rot when I retire. I have a list of things to do, like cleaning out the prolific amount of STUFF in this house. I want to go to the recreation center which has a series of exercise classes for people with arthritis. I have so many crafts that I have not touched in years. And I will be able to spend the time I want in my garden.

 

 

Fat Shaming

There is a very strong movement out there that I think is wonderful and way overdue. It seems to be popping up everywhere on the Intranet. There are many web groups that are devoted to the principals of stopping Fat Shaming and Body Acceptance. It’s about time.

See, it isn’t just about just other people accepting a person of size. It is about how you accept yourself and that is the basic principal for most of these groups. They know to change society’s  point of view will include fighting the fashion and medical-insurance worlds. They have to take on the giant media world. But at least they are starting the awareness. This will start with the individual saying “no more guilt and shame.”

This is not about  eating whatever you want. It is about being healthy at any weight. And the first thing that most people say is that if you are overweight you are not healthy. That is not true. The degree of being overweight and the abilities of the person are factors that need to be included in the overall health of a person. But to judge someone by a statistic is unfair and bias. It is how the insurance companies do it. It is how the medical profession where trained. And it is darn near impossible to change those minds.

Most of these programs work with the primary concept that people have to accept and love who they are. If you have self-compassion for yourself, you will naturally take care of yourself. Taking care of you includes eating better. It means dealing timely with health issues. It means getting the care that you need when you need it. It means dealing with stress. It means, and I think this is the most important concept, not letting people make you feel guilty and bad about being you. Do not let people define who you are.

Living in a world where being Fat has only a negative connotation is difficult. You are discriminated, ridiculed and harassed. Up to now, it has been generally accepted that it is ok to pick on the fat person. We see it in our media. Look at the characters who are the bunglers and pathetic ones in movies and TV. They are fat. Fat equals dumb.

Fat shamming will probably never go away. But I am glad that it has a foothold and people are becoming more aware. I think of all the young girls who put themselves through torture to starve themselves and end up with an eating disorder. Being overweight can be an eating disorder too, but you do not see the same empathy for someone who struggles with compulsive eating. I think about how many women think they are grossly overweight and therefore an abomination and they really are not. What do you think would happen if these women were not riddled with guilt and shame?

Getting rid of the guilt and shame to me is the most important part about this new movement. Women are easily boxed in by trying to meet society’s rules. If people are free of guilt and shame, they are able to dream and be creative and do amazing things. I know many women I work with who are so focused on everything they put in their mouths. They count calories or points and perseverate on every morsel and are bound up with such guilt that it limits them to enjoy life. There is little joy for those who are so worried about every point and calorie. Enjoying one piece of cake does not make you a horrible person. It is like being tied to bully. And organizations like Weight Watchers feed that mentality. I know this to be true as I have done WW many times only to end up frustrated and shamed. Nothing says guilt like getting on a scale in front of everyone in a group, being weighed and although they don’t say it out loud…. Failing because you did not lose a pound. OMG, I think of the subjective oppression that brought on.

Being free of food shame is very liberating. And if you really listen to your body, you will eat what you need and when you need to. But that is a hard process to learn in our world. That’s another blog.

Pay attention to this change. It is everywhere. It makes me hopeful for the next generations. It has to be a better world where every individual is important and is allowed to be free from shame and guilt. Join in this fight for freedom of guilt. A healthy body can be at any size.

Here are a couple of organization’s I am involved with:

https://benourished.org/

https://www.sizediversityandhealth.org/index.asp

 

 

 

Let there be cake!

I saw the bright reflection from down the hall. The light glimmered off the protective covering as my boss walked towards me. It was time for our weekly staff meeting and we met and turned to enter the room together. It was like walking with one of the three kings from the Orient to present the holy child with frankincense or myrrh. She had the gift of the Magi. She had birthday cake.

If I was abandoned on a dessert island and could only have one food, it would be chocolate birthday cake covered in butter cream frosting with tons of roses and flowers. And there is one store here that makes the best. My boss was carrying one of those exact cakes into our meeting as a surprise for one of staff. I had to decide at that point if it was the best day or the worst.

I have been going through an on-line course call “Be Nourished.” It is a series of six modules that offer lessons and inspiration to learn to become an intuitive eater. No diet, no starvation and definitely no deprivation. It takes practice and training to quiet the mind and really feel what the body is saying. Instead of eating from emotion, you eat when and what your body says it wants. Believe it or not, when you really pay attention, the body does not crave sugar. I was surprised to see how easy that has been. I also noticed that I do not crave carbs and salty things as much.

If you think by “letting go” there would be the urge to eat everything under the sun. For some, I guess that happens. But then, it is in response to an emotion and not the actual response to hunger. I discovered I eat when I am bored. I eat out of habit. Its noon, it is time for lunch. But now I wait until I am hungry. It is weird also to actually feel hunger. And then I listen to what my body says it wants. I bring my lunch but at dinner, the choice often is salad automatically.

The other part of intuitive eating is knowing when your full. There are studies which say often obese people do not sense full. I stop for the most part when I am full or just know to stop. Sometimes the guilt of throwing food out makes me push past the point where I could stop.

I sat through the meeting eyeing with delight and patience for them to cut the cake. But when they did, I passed on it. It was only 10:00 am and I truly was not in the mood. I did not want the sugar rush that early on in the day only to crash later. I knew the cake would be left in our shared area and others would attack it later as was my plan. But I ate my lunch first. I was not hungry after that, but images of butter cream rosettes danced in my brain. Finally, I gave in and went to cut a chunk for myself. I included a piece of the biggest pink rose. It was only about an inch and a half square piece. I had to carry it back to my office. I knew if someone passed me in the hall I would get “the look.”

I actually set it behind me on a cabinet for a bit and again reassessed how I felt. The biggest hurdle was the guilt. It was so strong. I thought of all the things I have been doing for myself. This was a blatant disrespectful act and lacked self-compassion, I thought.  I spun my chair around to gaze at the loveliness of the rose which just happened to be my favorite color. I spun back to my computer to think how I would feel with all that sugar pulsing through my body after so long a withdrawal from most sugary things. I could feel the cake behind me. Its chocolate goodness filled the air and the pure white of the frosting sat waiting to be enjoyed. I spun around and with fork in hand, slowly and with purpose devoured the piece. I tasted every grain of sugar, every ounce of butter, every essence of dark cocoa.

It was done.

Was it worth you ask….. Hell, Yeah!

Frustrations

I was going to add an image here, but after looking through clip art I was so offended and insulted that I decided I would not put a picture in. Google images for obesity and take a look at the insulting and sarcastic images out there.

A two second look was all he gave it. A brief glimpse into the Internet and he declared his ruling. “It is not a reported side effect.” He had gone to the manufacturer’s website and true, it is not listed. I had scoured the internet for information before taking the drug. But here I was, three months after starting this new shot and 16 pounds heavier. He deduced it must be due to my consumption. I looked at him through tears and said, “Do you know how much food I would have to eat to gain that much weight that quickly?” He could not respond. I sat there, tears streaming down my face and said, “You are calling me a liar.”

Here I was again with a follow up visit to the rheumatologist office. At the December visit, I was having such a terrible reaction to the medication, Humira, that they thought I had damaged my heart. I was sent through many tests and had to visit a cardiologist. The results of the tests were my heart was fine and strong. I was taken off the medication and improved immediately. But there was an impact on my kidney function again. Once off the drug, I immediately started to take the few pounds off I had put on.

One month later, in January, I was on a new shot called Stelara. This shot is outrageously expensive and not everyone is approved for it. I was only because there was not much left for me to take. I have taken within the last three years Enbrel, Simponi, Cimzia, Avara, Otezla, and Humira. When I first went on medication thirteen years ago, I was put on methotrexate (MTX) and prednisone. Six months in I was peeing blood. I told my doctors who said it was because I was on Coumadin. I stayed on this drug for a year and a half. My glucose A1C went from 5.6 to 13. My blood pressure went up and I gain thirty pounds.

They took me off the drug and sent me to a specialist because my kidneys were damaged. One kidney seemed to not be working at all. The nephrologist intern said to lose weight. That was the extent of the visit. The damage was there and there was nothing they were going to do. My kidney did get better over time and my output levels improved. I also dropped the weight and then some and lowered my glucose levels too. It never returned to the 5.6 but stayed around 6, which at that time was ok.

Then, I started having kidney stones. I passed and collect over 32 stones. They were big and they were small. Some hurt terribly, others not so much. I never went into the hospital and I probably should have for the last one back in 2015. It was so big that I struggled to pass it. The labs results showed dangerous levels of uric acid in my blood plus other indicators that the kidney was not working. But no one did anything. I even showed the stone to my doctor after I birthed it and he cringed. My kidney labs never went back to normal. But I also have not passed stones because he put me on allopurinol. Kidney issues are now commonly reported now for people with psoriasis and psoriatic arthritis and they are beginning to do research on it. But no one has admitted that the medication exacerbated this situation or this correlation.

Here I was again, sitting in a doctor’s office being told to go on Weight Watchers. I have been on WW so many times I know the points for just about everything I eat. Last time on WW, I gained weight. Then the discussion about bariatric surgery came up again. I just gave up and sat there crying. I am so weary of all this. I told him I put on 3.4 pounds from the reading I did yesterday in the morning to checking the scale at night when I got home from work. It went back down the next morning but was about a ½ a pound more from the previous days. I have watched in horror this slow creeping. And yet, I have done everything I can to be careful in my consumption. Nothing changes with me in my diet. I eat the same breakfast and lunch as I have for years. Dinner is always chicken and veggies or salad most week days. I have cut out salty things including my beloved cheese.

On top of the weight, my blood pressure sored to dangerous levels right after the first shot. This is a common side effect of the shot and reported in the material. My kidney output again indicated there was a serious issue. My labs were terrible and the levels indicated were now in stage four CKD. My PCP was so concerned he called me in to the office. Again, he gave me medication for the BP. But again, the weight issue was my fault. After a week on this new BP medication, my once skinny ankles looked like Barney Rubble’s. The BP came down a bit but not enough. I was so puffed out that there were nights by feet hurt. I finally said enough of this and he put me on something else. Too soon to say what will be that outcome.

I will admit I am terribly afraid. The weight issue is such a horrible thing for me. Trying to convince people that I do not eat what they think I do is a never ending battle for me. Both doctors have recommended bariatric surgery and both doctors admit it would be very high risk for me. No one sees my health issues past the fat. I am not a person; I am a morbidly obese non-compliant patient.

I went to the patient portals for people with PsA and Psoriasis. In less than an hour, I had four pages of patient’s quotes who reported large weight gain on Stelara. It’s out there. I am not alone. And the frustration is not mine alone either.

And then I got it. The biggest selling point of Otezla is that people lose weight on it. It is true documented fact that you will lose weight on it. It is from being so sick. Those who lose weight reported diarrhea, nausea and other gastric issues. I was on it for a short time and it made me terribly sick. I could not walk straight. I felt like I was falling over all the time. It was like living with the worse hangover. It did nothing for my PsA or P.

This Stelara is a fairly new drug. It is expensive. It costs over $20,000.00 a shot. That is why most people do not get it as insurance companies do not want to pay that. It IS amazing. My psoriasis is almost gone. My ability to move is much improved. My pain levels have not been this low in years. I am grateful for this. But would people even try it if they knew there was a good probability they would gain weight on it? No, they won’t because being fat in America is the worst thing possibly you can have wrong with you.

I read somewhere that people would rather face debilitating depression and face suicide than take medication that would help, but had the side effect of significant weight gain.

I write this for people who have medical issues that may be similar in hope there is some comfort to know it is not just you. I found over fifty people who are on the same medication as I who took the time to write about it in post on a patient board somewhere. It is a small percentage of users? I do not know but I have to think it is more prevalent than that because not many people use or will write on these patient boards. Does it matter? Yes, because if we do not advocate for better treatment we will become slaves to drug companies selling poison. Doctors need to be aware that not all obesity is caused by consumption. I will probably never in my life be able to prove that. But I am going to try.